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Tjalf Ziemssen, Fabian Kratzsch, Marco Eulitz, Raimar Kempcke, Nina Kleiner, Heinz Reichmann MS@uniklinikum-dresden.de
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 To develop and evaluate a new Multiple Sclerosis patient MSDS 3D was adapted from eCRF forms used in clinical studiesK For very The MSDS 3D server can not only use the patient terminal in the MS
management software and hardware MSDS 3D for guideline-based visit, certain modules are defined to each visit according a predefined center, but can interact with the patientps home computer or mobile phone.
management and documentation of MS patients. schedule according clinical pathways. Patients could be included in So a first version of the MS eMobile phone was developed.
 !"Œ| Multiple Sclerosis Documentation System (MSDS) has different modules (eg. Natalizumab, clclinical studies).
been developed as standard MS documentation system in Germany since
2001 to generate data for the German MS registry. Up to now, there has
been no interface to patient and nurse data for multidimensional evaluation
(fatigue, depression, QoL, treatment management). As MS treatment
protocols get more and more complicated with implementation of new
drugs, MSDS 3D was developed to change the solely documentation to a
patient management system according current guidelines. The main screen includes the modules of the actual visit as well as the last
and next visit. In addition to the necessary modules, the obligatory


 
timeframe for visits is presented. If a visit does not take place, physiacian
and patient are reminded.
|!#Œ| In addition to the local hardware running MSDS, a MS eMobile phone can be used to contact the patient or to be contacted by
touch-screen and internet-based module (interface to patients mobile the patient. It includes a calendear and an individualized information
phone) was developed for this project using ABS-VO technology to add platform.
patients and nurses data using this interface. Special treatment and study In a pilot phase, MSDS 3D including the patient terminal was tested by 100
modules were developed with a defined visit schedule and mandatory MS patients. The feedback was positive in more than 90% of the patients.
examinations which are documented and visualized by MSDS. Other
reports eg. from neuroradiologists, ophthalmologists are implemented Main part of the system is the interactive patient terminal which can be
 



using the MSDS internet server. A touch screen terminal was developed for used to get information from the patient by intelligent adaptive
collecting patients data and to provide information to the patient. questionnaires. As well, information can be provided to the patient. We have developed a new MS patient management system whgwhich was
(A) Information from the patient (B) Information to the patient positively evaluated by the MS patients in a pilot study. It is able to cope
with more complex treatment algorithms in MS patient care. To multicenter
studies arte on the way to evaluate the system in a university-based
scenario (REPABO) and a community neurology-based infrastructure (X-
Scale).