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EL QUE NO HABLA
SERES DE CARENCIAS
FUERZA
INTERCAMBIO
Exclusin
Invisibilidad
Sujetos
de beneficencia.
PACIENTE
AGENTE
AGENTE MORAL:
AQUEL QUE ACTA EN SU PROPIA
REPRESENTACIN
MENOR MADURO
CAPACIDAD RELATIVA
PARTICIPACIN EN
ENSAYOS CLNICOS.
CUIDADO CENTRADO
EN LA FAMILIA.
PROMOCIN DE LA
AUTONOMA
EDUCARE
EDUCERE
EJERCICIO DE CIUDADANA
DUDH
CONVENCIN INTERNACIONAL
SOBRE LOS DERECHOS DEL NIO
CARTA EUROPEA DE LOS NIOS
HOSPITALIZADOS.
Given his level of maturity, failure to respect his wishes, especially regarding an experimental
treatment regimen that is unlikely to significantly alter the course of his illness, would be
profoundly disrespectful and potentially harmful, leading to feelings of isolation and distress.
Situations like this one do not lend themselves to easy solutions. By helping to facilitate, clarify,
and resolve areas of contention, pediatricians can be extremely helpful. The challenge for
pediatricians is to do so in a way that is both sensitive and respectful of the childs, parents,
and providers needs, needs that are often in conflict with one another.
In many cases, simply by providing a space where Michael and his mother can speak freely
about their choices and the reasons for those choices will lead to a solution that is acceptable
to both. Michael needs his mother to hear what he is saying, and the physicians role in this
case is not simply to override his desires, but to facilitate the opportunity for his mother to
understand what he needs in this difficult situation.
Los nios que tienen una enfermedad terminal son almas viejas y
sabias, en todo nio con algn deterioro fsico antes de la
adolescencia emerge prematuramente su dimensin espiritual,
aquella que generalmente se manifiesta en la adolescencia para
compensar la perdida de las capacidades fsicas, son ms maduros
que los nios de su misma edad.
Por esta razn los nios en procesos de muerte deben intervenir
en la toma de decisiones, ellos tienen la sabidura para entender
qu est sucediendo y siempre van al grano. Se debe estar atento
a las preocupaciones que les rodean como son: la posibilidad de
estar expuestos a mayor dolor y el sufrimiento que su partida
producir en sus padres y familiares o aspectos de ndole
econmica.