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Health Care:
A Right Worth Fighting For
A
s far back as I can remember, my father told me, “If you don’t
have your health, you don’t have anything.” But this was such
an abstract notion, I couldn’t comprehend it completely—not
until 2008, when a disease put my health in jeopardy.
It actually began in December 2007, about six weeks after my first
mammogram came back clean. I was doing a self-exam in the shower and
felt a lump. I hoped it was just a cyst, but I scheduled a doctor’s appoint-
ment to make sure. My doctors and oncologist debated whether it was
necessary to perform a biopsy. Being just forty-one years old, the odds were
that it wasn’t cancer. I was given three choices: I could do nothing, except
monitor the lump. I could have a fine needle aspiration, which if it was can-
cer carried the risk of spreading the cells elsewhere in my body. Or I could
go through with the biopsy.
Later, I learned that many doctors tell women of my age that they’re
probably too young for cancer, and dismiss them without a more thor-
ough check and a discussion of their options. After close consultation
with my medical team, I chose the biopsy. I remember coming out of sur-
gery and being in the recovery room. The doctors had just done the frozen
section, and they reported that I was okay. But a few days later when the
results of the pathology report came back, there was a different conclu-
sion. The doctors told me I had breast cancer.
It was like getting hit with an anvil—this huge weight that crashes
down on you. My children were so young. The twins, Rebecca and Jake,
were just eight, while Shelby was four. I couldn’t help thinking of the mile-
stones in their lives I might miss. I couldn’t help wondering how many
more anniversaries I would have with my husband, Steve. Breast cancer
strikes at our very identity as women, affecting how others perceive us,
how we perceive ourselves. I had been vigilant about breast cancer, educat-
ing myself about the importance of self-exams and knowing how my
breasts normally felt, but still breast cancer had always been something
that happened to other women. And now it was happening to me.
The news came during the heat of the primary battle between Senators
Obama and Hillary Rodham Clinton. At the time, I was a national cam-
paign cochair for Senator Clinton, making media appearances as a surro-
gate, in addition to my role as a Democratic Party fundraiser for competitive
congressional races. My job as a member of Congress was very demanding,
as was the job of being a mother to three children. While I was determined
to continue these responsibilities, cancer doesn’t wait for anyone, and I was
resolved to beat it.
I had an excellent team of doctors on my side. They told me the cure
rate for a tumor the size of mine, less than a half-centimeter, was over 90
percent. I had a lumpectomy and prepared for radiation. But first my
health-care team recommended a genetic test. The doctors had learned
that I was an Ashkenazi Jew, meaning my ancestors came from Eastern
Europe. They explained that Ashkenazi Jews are more likely to have a
BRCA1 or BRCA2 gene mutation that dictates an increased chance of
recurrence, along with a high risk of ovarian and other cancers. Despite
having worked with breast cancer advocates for years, I was totally un-
aware of this link. The test was performed, and it came back positive for
the BRCA2 gene mutation. I had no family history of breast cancer, but
had I been aware earlier about this gene mutation, I would have known
that I had up to an 85 percent chance of getting the disease at some point
• • •
This same goal has proved elusive for generations that have come before.
I was reminded of this every time I would encounter venerable Massa-
chusetts Senator Ted Kennedy on Capitol Hill. Of course, comprehensive
health-care reform was the cause that most galvanized Kennedy. When
Nixon proposed a health-care plan in 1974, however, it was Kennedy who
helped defeat it, because in his view the plan didn’t go far enough. This
was one of Kennedy’s most profound regrets.
It took nearly twenty years before Washington tackled the issue again.
The Clinton administration’s bid for universal coverage, led by then First
Lady Hillary Clinton in 1993, met fierce opposition from the health-care
industry and from traditional conservative forces like the Heritage Foun-
dation, which criticized the plan for being too bureaucratic. Democrats
in Congress did little to move the Clinton administration’s plan forward,
offering only tepid support, not nearly enough to counter the momentum
against reform. Any opportunity to build consensus for a modified ver-
sion of the Clinton plan dissolved with the sweeping 1994 Republican
congressional election victories, which vaulted Newt Gingrich into the
House Speaker’s role. Another fifteen years would pass, with more and
more Americans unable to afford health-care coverage joining the ranks
of the uninsured.
Against this historical backdrop, there’s no question that the Affordable
Care Act of 2010 was the most hard-fought legislative victory of the mod-
ern political era. A true breakthrough, its passage paved the way for roughly
thirty-one million uninsured Americans to finally receive health-care cov-
erage. It contained a slew of consumer protections and efficiency measures
that would help rein in runaway costs. I only wish that Senator Kennedy
had lived another six months, so that he could have celebrated this mile-
stone with us.
I remember vividly the resolve and determination we had as a caucus
when we left our caucus meeting to go and debate the Affordable Care
Act before the vote was to be called. That Saturday we met together in
the Cannon House Office Building, which is located across the street
from the Capitol. Rather than take a tunnel under the street that links
the buildings as we often do, we decided to link arms and walk out across
the street past protesters shouting things I can’t even repeat in this book
and even spitting on members of the Congressional Black Caucus. All of
this anger, all of this vitriol, in exchange for our campaign to ensure that
every American would be able to see a doctor. At town hall forums around
the country members of Congress, including myself, were shouted down
by the Tea Party activists as we tried to talk to our constituents about
how the legislation would affect them. Those same activists came to
Washington to display signs that compared the President to Hitler and
Stalin, that accused him of being a Muslim terrorist. They even traf-
ficked in conspiracy theories about a grand plan to destroy America’s
capitalist economy. It was the most hysterical reaction in American poli-
tics since Sen. Joseph McCarthy’s paranoid campaign against so-called
communist spies.
For a party that for decades has been foiling efforts to bring compre-
hensive health care to Americans, that’s to be expected. But you’ll notice
that the GOP’s attacks are almost exclusively distortions, lies, and mis-
characterizations about health-care reform, including the oft-repeated lie
that it was a government takeover of health care. These party members
conveniently ignore the fundamental changes the Affordable Care Act
brought to the nation’s health-care system while leaving the private mar-
ket health care and health insurance system intact.
The partisan battles over health-care reform carried over to the 2012
election, not even stopping when the conservative-leaning Supreme Court
ruled the law to be constitutional. During the Republican primary, presi-
dential candidates practically fell over one another promising to repeal
“Obamacare,” originally a derisive term the President eventually embraced.
As he said, “Obama does care.”
Even some Democrats have asked me whether these reforms made it
harder for us to win elections in 2010 and 2012. There are voices within
the party who say we should not have made health-care reform our top
legislative priority in 2009, that it wasn’t worth it. This is a fair question. I
think this triumph was absolutely worth the political sacrifices we made.
To take the true measure of this program, it’s necessary to look back
just a few years at the way the American health-care system was work-
ing just before the inception of Obamacare. The Deloitte Center for
Health Solutions conducts annual surveys of American health-care con-
sumers. Their 2011 survey was essentially a final snapshot of consumer
behavior pre-Obamacare. It wasn’t pretty.
Perhaps the most basic standard for evaluating a nation’s health-care
system is whether citizens feel they can seek medical care when they get
sick or injured. The Deloitte survey found that in 2011, roughly half the
consumers avoided seeing a doctor because the cost was too high, including
some who had insurance but didn’t want to use it. Among the uninsured,
83 percent said their refusal to seek care was due to the exorbitant cost.
Given that the nation’s health-care expenditures are over $8,000 per
capita, an astronomical 18 percent of GDP, it should be no surprise that
roughly three in five Americans told surveyors that their monthly health-
care expenses made it hard for them to afford other life essentials like
food, housing, education, and fuel.
Americans were mired in a system where there were huge inequities
in health care based on income. While we constantly heard the refrain
that America had the best health-care system in the world, the research
and statistics told a different story. According to an Organisation for
Economic Co-operation and Development analysis from 2007, U.S. citi-
zens have a lower life expectancy and a higher rate of death from illness
than citizens of other Western nations studied, despite the fact that
Americans spend more on care than any other country. Research shows it
is traditionally harder in the United States to get same-day doctor care
when sick and that we have the highest incidence of obesity, cancer, and
AIDS, suggesting our health-care culture does a poor job of discouraging
behavior that creates health risks.
Facing a severe economic downturn as he was sworn into office, Presi-
dent Obama recognized that the economy and our health-care system
were inextricably intertwined. Fixing health care was an important com-
ponent of fixing our economy.
With a Democratic President and a Democratic Congress in 2009
and 2010, the time had come for elected officials to put politics aside and
do what was right for the country, electoral consequences be damned. I
am proud of the President for having that courage and fortitude. And I
am proud of all of the Democratic members in the House who knew vot-
ing for health-care reform would put their political career at risk, but did
so anyway. That is the kind of leadership that serves this country best.
Many of my Democratic colleagues in the 111th Congress lost in 2010 at
least in part because of their vote for Obamacare. To this day, I’ve not
been able to find one of them who regrets their decision.
bout with breast cancer I have had a double whammy. After I shared my
experience, I heard so many stories from women diagnosed with breast
cancer at a time they didn’t have health insurance. They needed both radia-
tion treatment and chemotherapy, but under the old system they had to
choose only one of those two treatments because they couldn’t afford the
copay and deductible for both. I can’t imagine how terrifying it must be to
make that choice.
In October 2009, during the American Cancer Society Cancer Action
Network lobbying day, I met a Florida woman who had a devastating
story to tell about her encounter with breast cancer. She described how
she learned of her diagnosis shortly after she’d gotten divorced and lost
her job, and with it her health-care coverage. The woman, who was under-
going chemotherapy at the time we met, even had to deal with the grief of
her dog dying. After she’d told her story, there wasn’t a dry eye in the
room. This woman needed to put her energy into fighting cancer, yet she
had to deal with her life’s losses and fight for health coverage on top of it.
As a three-time cancer survivor, her preexisting conditions prevented her
from securing reasonable health insurance, and she was not going to be
able to secure coverage until she found employment with comprehensive
insurance. She told me that her doctors recommended she go through
chemotherapy and radiation, but without health insurance, she wasn’t
sure she could afford either and would most likely be forced to choose one
or the other. This is a grievous injustice, and it underscores why we so
desperately needed health-care reform.
So on a personal level, I’m very much looking forward to the end of
this cruel era in American health care. I feel confident that millions of
women feel the same way.
health insurance through their employers, and they have been free to
keep those plans perfectly intact. But if they should lose their job, or if
they should learn of a preexisting condition, they have the comfort of
knowing that they will still be insured, thanks to health-care reform.
Obamacare is not some radical “socialist” enterprise, as opponents of
the legislation have suggested. In fact, credit for the original idea belongs
to the Heritage Foundation, the same ultraconservative think tank that
played a leading role in the defeat of the Clinton administration’s effort at
health-care reform in 1994. The foundation conceived a formula whereby
all consumers would not only get health-care coverage, they’d be obli-
gated to get it, such that young and healthy consumers are brought into
the system, providing balance against the high-risk patients who may
have preexisting conditions. To offset the proportionally high cost to low-
income consumers, the system would provide subsidies.
For real-world evidence of how it works, just look to the state of Mas-
sachusetts, where in 2006 Governor Mitt Romney signed a similar plan
into law. That system has delivered higher quality care for less than it costs
in the traditional American health-care system while extending health-care
coverage to some 98 percent of Massachusetts residents. So President
Obama took a conservative idea, which was first put into action by the man
Republicans chose to be their presidential nominee. Indeed, I and many
other Democrats, including President Obama, wanted the health-reform
legislation to go further and include a public option, but you can’t let the
perfect be the enemy of the good. This government-sponsored public option
would have been one of the choices in the health exchange, keeping private
plans honest and competitive. Like the President, I don’t care if an idea
comes from a Republican or a Democrat; if it solves a problem and works
for the American people, it’s good enough for me! And Obamacare solves
big problems: helping millions of Americans who didn’t have health insur-
ance and putting reins on runaway health-care costs.
Much has been made of the costs of Obamacare, but many of the ac-
cusations are false. For starters, it is not “the largest tax increase in the
history of the world,” as the bombastic Rush Limbaugh told his listeners
after the Supreme Court upheld the legislation in June 2012. In fact,
down medical costs, but Obamacare is the first and most important step
in that direction. From a financial perspective of managing our nation’s
budget and from a moral perspective of providing coverage to millions of
uninsured Americans, this was legislation we couldn’t afford not to pass.
governments and foreign nations, researching the cause and effect of ex-
isting policies, analyzing trends, and planning for contingencies. In short,
it’s wonky, requiring intensive study and critical thinking rather than
simple sound bites from the campaign stump.
I understand that politics is a contact sport, and I probably give as
much as I get. But with an issue like comprehensive health care, the stakes
are too high to engage in fear mongering. If Republicans think this health-
care reform law doesn’t trim enough from future deficits, by all means let’s
talk about ways we can make it even more efficient—but as part of that
conversation, we have to at least agree that every American is entitled to
quality affordable health-care coverage. If we can’t agree on that, then it
won’t be possible to have a constructive discussion about moving forward.
The American people have the right to demand more from their leaders
on an issue so far-reaching. They should be skeptical of a politician who con-
jures fear in the audience without offering a specific alternative. We’re all
susceptible to emotionally charged arguments, especially if we’re told that the
money we’ve earned is going toward those who don’t deserve it, which is the
overarching theme of anti-tax, anti-government diatribes on the right. But in
that moment of frustration and resentment, are we really our best selves?
This is not a battle between those with health care and those without.
We are all connected, young and old, rich and poor. We all have a stake in
the future, and good health is what ensures that future. This is not a fiscal
issue; we have always been able to afford comprehensive health care. It is a
moral issue.
Finally, it is a personal issue, for each in his or her own way, because
none of us knows what health scares may be around the corner. After I
went public with my treatment for breast cancer, my daughter Rebecca
came to me, her eyes wide as saucers. She wanted to make sure I was okay,
but then she asked something else: “Mommy, am I going to get cancer?”
That’s a question for which no mother is ever fully ready. I couldn’t tell
her “No, you won’t.” I told her the truth: that it wasn’t something she had to
worry about for a long time, but that, as she grows, I’ll help her to be as
healthy as she can. In every way possible, I will do that. And I will fight for
a health-care system in America that will enable me to keep that promise.