Documentos de Académico
Documentos de Profesional
Documentos de Cultura
2.POLITICAL WORK
3. LEGAL ACTION
We are taking the first steps towards, if necessary, to sue the Spanish
Health Ministry for the bad shape that patients with Central Sensitivity
Syndromes are in (ME/CFS, FMS and MCS) and the lack of proper
public health care services. We are just beginning this. For now, we
are starting with Catalonia and then we hope to reach all of Spain and
who knows, maybe some day the rest of Europe might want to join in
such type of action. The idea is that this legal action become a public
issue in the press and so it can be talked about, and also talk about
XMRV, etc.
4. TRAINING
Health workers are not trained about ME/CFS in Spain. They think that
ME/CFS is a psychological illness and they prescribe antidepressants,
tranquilizes or Lyrica. We, ASSSEM, have written a document (for now
it is only in Spanish, but we are working on the English version), with
very concrete information for the doctor to understand what is
ME/CFS, how to diagnose and the options that there are in treatment.
We are doing talks, courses and presentations for health workers.
5. RESEARCH
6. Proper testing